Section of Palliative Care and Medical Ethics

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Links: University of Pittsburgh Sites

Center for Bioethics and Health Law (CBHL)—The CBHL site includes information on faculty, programs, events, and other bioethics resources available on the Web.

Center for Research on Health Care (CRHC).

Consortium Ethics Program (CEP)—The CEP is a regional bioethics education network sponsored by the University of Pittsburgh Center for Bioethics and Health Law and the Hospital Council of Western Pennsylvania.

Division of General Internal Medicine.

Links: Pain and Oncology

Agency for Healthcare Research and Quality (AHRQ)—The AHRQ site lists various resources on pain and cancer pain.

American Society of Clinical Oncology (ASCO)—The ASCO offers site visitors a connection to information and one another.

Cancer Net—Cancer Net offers oncologist-approved cancer information from the American Society of Clinical Oncology.

International Association for the Study of Pain (IASP)—The IASP provides a dictionary of pain terminology and a curriculum outline on the study of pain in medical schools.

Memorial Sloan-Kettering (MSK) Cancer Center—The MSK Cancer Center’s Web site provides a wide range of information for medical professionals, patients, their families, and the general public.

National Cancer Institute (NCI)—The NCI site provides a wide range of cancer information.

Links: Palliative Care and Hospice

American Academy of Hospice and Palliative Medicine (AAHPM)—Originally organized as the Academy of Hospice Physicians in 1988, the AAHPM is the only organization in the United States for physicians dedicated to the advancement of hospice/palliative medicine, its practice, research, and education. AAHPM members are physicians from many medical specialties who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families.

Americans for Better Care of the Dying (ABCD)—ABCD is a nonprofit organization that is dedicated to social, professional, and policy reform and is aimed at improving the care system for patients with serious illnesses and their families. The organization consists of a coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with a fatal illness. ABCD provides an information network, encouraging and supporting public involvement in correcting system deficiencies. The organization seeks to harness the strength of many concerned people to speak with a shared voice.

Cochrane Collaboration—The Cochrane group provides reviews of research evidence about the effects of health care.

Compassion and Choices.

ElderCare—ElderCare is one of the oldest and most comprehensive eldercare gateways on the Web. The Web site is designed for caregivers, family, health care providers, and professional advisors of elderly people with care needs, and it offers a collection of hundreds of reviewed links to online information about health, financing, housing, aging, and other related issues.

Hospice Foundation of America—This foundation site offers information about hospices and hospice care.

National Association for Home Care and Hospice (NAHC).

National Conference of State Legislatures (NCSL)—The site offers information about legislation related to end-of-life issues in states.

RAND Center to Improve Care of the Dying (CICD)—The CICD was founded in the belief that life under the shadow of death can be rewarding, comfortable, and meaningful for almost all persons but that achieving this goal requires real changes in the health care system. The CICD has an interdisciplinary team of committed individuals who are engaged in research, public advocacy, and education activities to improve the care of the dying and their families.

“When Death Is Sought: Assisted Suicide and Euthanasia in the Medical Context”—In May 1994, the New York State Task Force on Life and the Law published a 217-page report titled “When Death Is Sought: Assisted Suicide and Euthanasia in the Medical Context.” Since this particular issue has received so much public attention, the report has been made available electronically on the New York Department of Health Web site. The report is posted in individual chapters.

Links: Patient Forums and Support

 Candlelighters Childhood Cancer Family Alliance—The alliance offers written materials and information about more than 400 peer support groups and contacts for family members nationwide.

Caregiver Survival Resources—The process of providing constant, vital care to a loved one is becoming a significant issue for many people. This resource provides help to caregivers to cope with the demands of caregiving.

Living Beyond Breast Cancer—This site offers a helpline and a wide variety of breast cancer–related information.

National Family Caregivers Association (NFCA)—The NFCA espouses a philosophy of empowerment and self-care that is predicated on the belief that caregivers who choose to take charge of their lives and who see caregiving as just one of the facets of life are in a position to be happier and healthier individuals.

Links: Other Organizations

American College of Physicians—The American College of Physicians–American Society of Internal Medicine (ACP-ASIM) is the nation’s largest medical specialty society. Its mission is to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine.

American Geriatrics Society (AGS)—The AGS is the premier professional organization of health care providers dedicated to improving the health and well-being of older adults.

American Medical Association (AMA)—The AMA is much more than a voluntary membership organization of physicians. It is the patient’s advocate and the physician’s voice. It sets standards for the profession of medicine.

American Society for Bioethics and Humanities (ASBH)—The ASBH is a professional society of more than 1,200 individuals, organizations, and institutions interested in bioethics and humanities. Its Web site serves as a resource for anyone interested in bioethics and humanities by providing a list of online resources and links.

Catholic Health Association of the United States—Serving the aged and chronically ill population remains an essential part of the Catholic health ministry. Catholic-sponsored health organizations provide this population with a broad spectrum of high-quality professional services, including acute and primary care, nursing home care, medical care, social day care, home health care, senior housing and assisted living, counseling, and case management.

Centers for Disease Control and Prevention (CDC)—The mission of the CDC is to promote health and quality of life by preventing and controlling disease, injury, and disability.

Commonwealth Fund—The Commonwealth Fund, a New York City–based national foundation, engages in independent research on health and social policy issues.

Department of Health and Human Services (DHHS) Healthfinder—Healthfinder is a gateway consumer information Web site from the U.S. government. It can direct individuals to selected online publications, clearinghouses, databases, Web sites, and support and self-help groups, as well as to government agencies and not-for-profit organizations that produce reliable information for the public.

Foundation Center—The Foundation Center’s mission is to foster public understanding of the foundation field by collecting, organizing, analyzing, and disseminating information on foundations, corporate giving, and related subjects.

Grantmakers in Health (GIH)—The mission of GIH is to increase the capacity of private-sector grantmakers to enhance the health and well-being of all people.

Idealist—With 14,000 organizations under one roof, this site allows individuals to look for organizations, volunteer and job opportunities, and much more.

Lindesmith Center—See Drug Policy Alliance Network. In response to inquiries from state legislatures, medical examiners, regulators, and doctors regarding the appropriate medical use of opioids, the boards of directors of the American Pain Society and the American Academy of Pain Management have promulgated a consensus statement called “Use of Opioids for the Treatment of Chronic Pain.” This statement urges states to recognize the importance of opioid therapy for the treatment of pain and to eschew legal, regulatory, or philosophical barriers that hinder or prevent the appropriate medical use of opioids for pain relief.

Medicare Rights Center (MRC)—The MRC was established in 1989 by Whitney North Seymour, Jr., to provide free counseling services to Medicare beneficiaries who cannot afford private assistance. MRC has conducted training sessions for organizations such as the Administration on Aging, the American Public Health Association, the American Association of Retired Persons, the Practicing Law Institute, Families USA, Teamsters Local 237, and the National Association of Geriatric Care Managers.

Nathan Cummings Foundation—The Nathan Cummings Foundation is rooted in the Jewish tradition and is committed to democratic values, including fairness, diversity, and community. The foundation seeks to build a society that values nature and protects ecological balance for future generations; promotes humane health care; and fosters arts to enrich communities.

National Association for Home Care and Hospice (NAHC)—Since its inception in 1982, this organization has remained committed to serving the home care and hospice industry, which provides services to the sick, disabled, and terminally ill in the comfort of their homes.

National Center for Health Statistics (NCHS)—The mission of the NCHS is to provide statistical information that will guide actions and policies to improve the health of the American people. As the nation’s principal health statistics agency, the NCHS leads the way with accurate, relevant, and timely data.

National Institute on Aging (NIA)—The NIA is one of the National Institutes of Health, the principal biomedical research agency of the U.S. government. The NIA promotes healthy aging by conducting and supporting biomedical, social, and behavioral research and public education.

Oregon Health Sciences University Center for Ethics in Health Care—This center combines the perspectives of health professionals, patients, and families to improve teaching, research, and clinical consultation about ethical issues in patient care and health policy.

Robert Wood Johnson Foundation—The Robert Wood Johnson Foundation, based in Princeton, New Jersey, is the nation’s largest philanthropy devoted exclusively to health and health care. It became a national institution in 1972 with receipt of a bequest from the industrialist whose name it bears, and it has since made more than $2 billion in grants.

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